Letter To Medical Director Dr. Farber

From: Paul J. Soychak [mailto:paul@paulsoychak.com]
Sent: Saturday, December 18, 2010 7:35 PM
To: michael.farber@ahs.state.vt.us
Cc: brian.erickson@vtmednet.edu; paul@soychak.com
Subject: Paul Soychak's Marinol Case
Importance: High

Dear Dr. Farber,

I know you probably know OF me, as you are currently deciding whether my life will continue or not. I have no idea if it is considered ethical for me to contact you, but since you publish your email, I imagine it is okay. I am the patient who, for seven years, lived via the Miracle of THC therapy. Nearly dead in 2003, FAHC, which had just excised two tumors from my GI tract, had made a mistake. Not only did the tumors not turn out to be cancerous, but they left me much worse. I could not eat, the normal 5HT-3 Antagonists just didn't work. In fact, Compazine, which had been given to me for ages, turned out to give me a grand mall seizure in the Chemistry Library while tutoring a would be med student in Organic Chemistry. This seizure broke 5 spinal vertebrae. So you see the miracle of THC for me is, what Dartmouth called, THE THC POSTER BOY. Now we have proven that this THC therapy is necessary for my survival in both legal and medical circles as I am sure you are aware with the mass of data you are no doubt reviewing.

I ask only this, before these colossal medical mistakes (some even criminal), I was well on my way to a career on AstroBioChemistry. FAHC changed all that. Not only did they not have the imagination to even consider Marinol or Dronabinol treatment when I was 88 lbs., puking blood, starving to death. Dartmouth, after saying they had never seen such a massive amount of mistakes, suggested it first. I was of course concerned that a drug of this nature would be tough to get. Not the case, it was approved the first day and that is when the miracle began.

Within one day, the intractable nausea I had was virtually gone for the first time since my surgery 5 months earlier. Within one week, I was eating normally. Within one month, I was back to my normal life and weight. Even tutoring again. But FAHC didn't "like" this drug. Kept giving me 5HT3's. One of those FAHC IV administered Compazine shots gave me the seizure that broke my spine AFTER we had seen the miracle of Marinol for me.

When Medicare took this away due to simple greed (they had argued my condition was not listed on the Compendia, truth told it was, but they used the Judge's ignorance to deny it, after 7 years of approvals.) This hearing was done via phone. The people who nearly killed me for 6 months couldn't even face me as they knew it was necessary for my survival and even conceded that at the hearing. Pure Greed. I think in their mind they knew I was on the registry an could just get THC that way. VT law does not allow their "caregivers" the right to create enough THC as I require, 10 mg every three hours would mean I would have to smoke ounces and ounces and literally be smoking nearly all the time. Even if I HAD a caregiver, which I do not, they are impossible to find, it couldn't and didn't work as the last year should show you . I will not die of simple greed.

I beg you, as you did four months ago, please approve this. I am just out the hospital from a C-Diff infection I got at Cleveland Clinic. I have Cleveland Clinic, FAHC and Dartmouth ALL telling you that without this drug I will die. Is this even something you have to think about? A wound I received the very day I got my Marinol back 4 months ago still heals. Every four months are myself and those who care for me supposed to go through this approval denial approval nightmare? I never sued FAHC, even though I have actual physical evidence Cleveland Clinic and Dartmouth both found against them. If you take this from me I will be forced to sue them to be able to move somewhere where profit never wins over a life and death medical decision.

Dr. Risko, a fellow Slovak and my Dentist who is trying like crazy to get my teeth fixed as from this vomiting my teeth have nearly all gone; tells me you are a good man. He has done so much for me, I hope he is right.

Please, from the depths of my soul, do not deny me this med. It really is a miracle I will be happy to show you myself if you want to see it. I am so weak now that another withdrawal nausea episode probably will do permanent damage or kill me.

Please do what is right here, and approve what I have 4 senators, 550 names on a petition for, and could recruit thousands more if need be, saying enough is enough here. I have been through hell. Please don't make that hell happen again, I am just beginning to finally heal. I offer you a meeting, my records, my videos…anything you need to validate what I say here. I have Anxiety Disorder with PTSD from Clerical Abuse. These refusals are really causing my panic to spin out of control.

Thank you from the bottom of my soul and for your time. I hope whatever happens you and yours have a healthy and happy holiday.

Sincerely,

Paul J. Soychak

WPAUL: Dr. Farber, our prestigious Medical Director, will decide my fate on Monday...

WPAUL: Dr. Farber, our prestigious Medical Director, will decide my fate on Monday...

My Letter To Senator Sanders

My Letter To Senator Sanders

Dear Senator Sanders, I have contacted your office about this problem and I believe the nice woman who helped me was Diane Ireland. I am literally the shining example of what's wrong with profit-based health care. After 2 ulcers landed me in FAHC's ER, they found what they called Tumors. I got 4 opinions and all said that without tumor excision surgery, I would die. I had the surgery. Not only were the Tumors not cancerous, but they effectively ruined my GI Tract. Now there Is so much scar tissue in my GI Tract that eating is painful and difficult. 2 years ago (The surgery was in 2003), a Dr. Willis GI MD here at FAHC did a barium study and an upper and lower GI series and said he saw "Some minor irritation but it looks fine to me!" Things worsened. Pain, weight loss, you name it. Finally I decided to go to Cleveland Clinic to get another hospitals opinion. When they saw the pictures taken from the barium study 2 years earlier, they were shocked. I had a nearly completely blocked pyloric valve which a simple upper GI with an inflated balloon fixed. Dr. Shay at Cleveland Clinic, showing me the pictures FAHC took two years earlier not only showed the blocked valve, but very clearly missed it! Impossible because that is what the test measures. What Dr. Shay also did not understand was how an upper GI could be done here at FAHC without them literally running into the blocked valve. Seems all was not fine. For two years I begged FAHC to help, their response was " What do you want me to do?" Cleveland said that there was no way the valve blockage could've been missed on the two tests at FAHC, yet they were. After my original surgery. I was left fending for myself. Couldn't eat, intractable nausea, vomiting, a bacterial overgrowth, pelvic floor dysynergia, Visceral Hypersensitivity, recurrent pancreatitis. Was at 99 lbs 3 months post op (2003 FAHC surgery), puking blood and was basically told I would die and was literally thrown at Dartmouth. Had to wait 39 days but got there. When I arrived, a Dr. Lacy GI MD informed me that " I've read your chart Paul, took me all weekend! You are just a series of horrifying medical mistakes!" He then asked if I had ever smoked pot. I said yes on occasion as years earlier my PCP had said it might help. Now I am a Biochemist, one who worked for Wyeth. I had never even heard of Marinol (aka Dronabinol). Well, Dr. Lacy put me on this Marinol (basically THC pills). It was a miracle. Within one day my nausea was gone, within a week, I was eating again, and within a month I was back to my optimum weight. Seems I wasn't going to die. The only hitch was that I would have to take it for life. For 7 years, approved my Medicare no problem. Suddenly, this past March, Medicare began suddenly denying to pay simply because my condition wasn't "listed" on the Compendia they use to determine coverage. In fact, it was. I went to the Med Library myself. Found "Post Operative Treatment and Prophylaxis" with no time limits or other restrictions. Well, at the Medicare hearing, where interestingly the judge AND Medicare reps were only there by phone. Obviously they couldn't face me. Well my appeal was denied. How? They said there was a disclaimer but I could never find any. They were using the judge's ignorance against me. Now 4 months had passed. Once again, I was about 99 lbs, All the same as before. My Dr.'s got me on the VT Medical Marijuana Registry but finding a caregiver was impossible. Also, under the tight laws of smoked pot for Rx, I couldn't get enough to match what I was on. By August, after the surgery in Cleveland, I was so bad I did nearly die. I contacted your office and worked with Diane, the Health Care Ombudsman, anyone who would listen. Medicaid at first simply parroted what Medicare said. Then, after your office, Legal Aid/HCO and finally a Dr. Farber (the states Medical Director) was contacted, The HCO called 4 months ago to say Medicaid WOULD pay. I thought my problems were finally over and began recuperating nicely. That approval was for 4 months but with all that had happened, it was assumed they would keep covering it. This past week that approval expired and I found out today that come Monday, I will no longer be covered. It was a shock. Right before Christmas they are going to try to kill me again out of simple greed? No. I contacted your office today, the HCO is on the case but it could take weeks to resolve. In those weeks I will be violently Ill. You see, the ONLY alternative nausea medicines that exist (called 5HT3 Antagonists), gave me seizures! One of which has now broken my spine in 5 places. Obviously, I cannot take them. I write to you as someone who knows you (Your Neighbour, Stephen Goldberg, uses me in many of his plays. Many you have come to see!); but also just so that, if something should happen as a result of this action to me, I thought you should know. And when we thought we had resolved the issue M. Ireland told me to inform her if anything further occurred. I offer my medical records, my own voice, whatever may help here. People, when they hear this say "THEY CAN'T DO THAT" Well, obviously they can and Do and are. If you can help, I am literally begging for my life here, please help me. I don't want to die of Greed. But if I do; use my story. I think it shows what you want people to see. Also, how does FAHC come to monopolise Burlington? Under your proposed Public Option that wouldn't bother me, but everyone tells me to Sue (even some at FAHC), but where would I receive care if I did? Sorry this was so long but I had to tell it. If only it helps in the future for you to have a real case and all the required documentation. Again my medical records are already open to your office. Use them. Thank you so much. I admire you a great deal (I voted for you when you were first elected here!) and I know you can use this to help explain that the insurance companies have already taken over and profit-based health care is a crime! Any help you could offer would be heartfelt appreciated. Thanks again. Sincerely, Paul J Soychak http://paulsoychak.com/ Paul@paulsoychak.com 8024974109 8884705852 174 Maple Street #8 Burlington, VT 05401-4633

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Paul J Soychak
http://paulsoychak.com
Paul@paulsoychak.com
8024974109
8884705852
174 Maple Street #8
Burlington, VT 05401-4633